What is your country currently doing to support carers?
Find out all you need to know about the current state of care in the United States. Our information covers topics like legislation, working arrangement for carers, respite care, what your country is doing to financially support carers, pension credits and the information and training you have access to.
Unpaid carers are formally recognized but are not considered a protected class at the federal level.i
The US lacks a national mandate on comprehensive paid family leave. California, Rhode Island, New York and New Jersey provide some variation of paid family leave.iv
Respite programs for unpaid carers are provided under the National Family Caregiver Support Program and the Lifespan Respite Care Act of 2006, which was intended to improve the delivery and quality of respite care services available to families across all age and disability groups.vi Other federal programs offer limited access to respite services.
Unpaid carers can receive some financial assistance, income, or tax breaks that can reduce the burden of the cost of caregiving. These options are embedded in various government programs and tax incentives if certain qualifying criteria are met.iii Through the Kupuna Caregivers Act, Hawaii provides financial assistance to support employed carers to remain in the workforce.iii
Unpaid carers can apply for Social Security disability benefits for the care recipient. There are two types of disability benefits; Supplemental Security Income (need based) and Social Security Disability (based on previous employment).v
Information and training
Unpaid carers have access to training and information through the non-profit organizations Family Caregiver Alliance, AARP, the National Alliance for Caregiving, and the Caregiver Action Network. The VA Caregiver Support Program and the National Family Caregiver Support Program both offer training and educational resources.vii
i Ohio State Bar Association. (2016). Laws Protect Employees Who Serve as Caregivers. Page 1. https://www.ohiobar.org/ForPublic/Resources/ LawYouCanUse/Pages/Laws-Protect-Employees-Who-Serve-as-Caregivers.aspx [Date Accessed: 16 July 2018]
ii Caregiver Homes from Seniorlink. (2017). Financial Support for Caregivers. Page 1. https://blog.caregiverhomes.com/financial-support-for- caregivers-the-ultimate-guide-to-home-care-costs-financial-aid-and-financial-planning-for-caregivers [Date Accessed: 16 July 2018]
iii Hawaii Aging and Disability Resource Center. (2017). Kupana Caregivers Program. Page 1. https://hawaiiadrc.org/Portals/_AgencySite/KCG%20 Info%20sheet%20071117_FINAL.pdf [Date Accessed: 16 July 2018]
iv Caregiver Homes from Seniorlink. (2017). Financial Support for Caregivers. Page 1. https://blog.caregiverhomes.com/financial-support-for- caregivers-the-ultimate-guide-to-home-care-costs-financial-aid-and-financial-planning-for-caregivers [Date Accessed: 16 July 2018]
v Disability Benefits Center. (2016). Applying as a Caregiver of an Adult with an Illness. Page 1. https://www.disabilitybenefitscenter.org/blog/applying- as-caregiver [Date Accessed: 16 July 2018]
vi Administration for Community Living. Lifespan Respite Care Program. Page 1. https://www.acl.gov/index.php/programs/support-caregivers/lifespan- respite-care-program [Date Accessed: 16 July 2018]
vii US Department of Veteran Affairs. VA Caregiver Support. Page 1. https://www.caregiver.va.gov [Date Accessed: 16 July 2018]
GL-NONPR-00336 [September 2022]